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Join us from home as we celebrate advocates who give rare disease patients a voice on Capitol Hill and in state government. The event is free and open to the public.
RDLA believes that every voice matters and that patients are the key to changing public policy. Thank you to all rare disease advocates who make their voices heard year-round and continue to advance policies that benefit the rare disease community.
The awardee for each category will be announced live at the RareVoice Awards on December 10th.
Federal Advocacy – Congressional Staff
Honors congressional staffers who have worked to create and enact policies for the rare disease community
Federal Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass federal legislation
State Advocacy – State Legislator
Honors state legislators who have worked to create and enact policies for the rare disease community
State Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass state legislation
Federal or State Advocacy by a Teenager
Honors teen advocates that have advocated for state or federal legislation
Artist-to-Advocate
Honors individuals who have utilized their artwork to advocate for federal or state legislation
To prevent the event’s confirmation email from getting caught in spam filters, please add svonfelden@everylifefoundation.org to your address book. Need help? Here’s instructions for different email clients.
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9th Annual RareVoice Awards
Thursday, December 10, 2020
7:00 PM EST
Virtual (link will be provided)
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9th Annual RareVoice Awards
Thursday, December 10, 2020
Virtual (link will be provided)
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Take Action
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9th Annual RareVoice Awards
Thursday, December 10, 2020
7:00 PM EST
Virtual (link will be provided)
Thank you for registering for the 9th Annual RareVoice Awards on Thursday, December 10th at 7:00 pm ET. You will receive a link to access the virtual event closer to the event date. We look forward to seeing you in December!
Just one more thing...please use the link below to invite your U.S Representative and Senators to attend the RareVoice Awards!
https://www.votervoice.net/EveryLife/1/campaigns/77328/respond
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