Meet rare disease advocates from your state and region, play games, and win prizes!
This is a fun opportunity for the rare disease community in each region and state to get together before Rare Disease Week to foster community and camaraderie. Whether you are new or a veteran of the rare disease community, there will be something for everyone. See below for details on the virtual session in YOUR region.
Please note that you will be prompted to select which Meet and Greet session below you would like to attend once you reach the checkout page. One session per attendee. Please choose the session with the state from where you are located. Please note the time zone!
Virtual Regional Meet and Greet Sessions:
AK, AZ, CA, CO, HI, ID, MT, NV, NM, OR, UT, WA, WY, U.S. Territories: June 8 at 6-7 pm PT
AR, IL, IN, IA, KS, MI, MN, MO, NE, ND, OK, SD, WI: June 8 at 6-7 pm CST
AL, FL, GA, KY, LA, MS, OH, SC, TN, TX, WV: June 9 at 6-7 pm CST
CT, D.C., DE, ME, MD, MA, NH, NJ, NY, NC, PA, RI, VT, VA: June 9 at 6-7 pm EST
No prior experience necessary. Registration for this event and all RDLA events are free for rare disease advocates.
This is NOT registration for Rare Disease Week. If you have not registered for Rare Disease Week and would like to please click here.
For more information or for any questions, please contact Swapna Kakani, RDLA State Advocacy Fellow at email@example.com.
EveryLife Foundation for Rare Diseases
1012 14th NW | Suite 500
Washington, D.C. 20005
Office: (202) 697-RARE
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